Cystic Fibrosis Program

Adult Cystic Fibrosis Clinic

Cystic Fibrosis Foundation certified programThe Adult Cystic Fibrosis Clinic at TGH is the largest adult program in the state of Florida and is certified and supported by the Cystic Fibrosis Foundation. Dr. Mark Rolfe is the medical director. He was joined by Dr. Tarik Haddad in October 2008 and Dr. Timothy Floreth in 2011. Together the physicians lead a dedicated team in providing multi-disciplinary care to patients of the program. The team of physicians, social workers, coordinators, dieticians, and respiratory therapists provide comprehensive care. Consultative services by gastroenterology, high-risk obstetrics and gynecology, interventional radiologists, ear, nose and throat physicians, and surgeons is also available.

 

What is Cystic Fibrosis?

Cystic Fibrosis is a defect in a major chloride channel which affects water movement across tissue surfaces. This defect causes the airways of the lungs to become primarily affected causing the frequent infections of the lungs and sinuses. Cystic Fibrosis can also affect the organs of digestion and reproduction.

Typical therapies include pancreatic enzyme replacement (Zenpep, Creon, and Pancreaze), mucolytic agents (Pulmozyme), inhaled antibiotics (Tobi and Cayston) and airway clearance devices (ThAIRapy Vest).

Clinical Research Opportunities

Multiple opportunities for research exist at our program. Please follow the link to learn more.

Transplant for Cystic Fibrosis

Gradual respiratory failure is the inevitable outcome of most patients with Cystic Fibrosis. In the later stages of this disease, lung transplant becomes the last therapeutic option in many cases. The combination of the Lung Transplant and Cystic Fibrosis programs provides a seamless transition with a common team of healthcare providers timing and transitioning the patient through the entire transplant process.